Autor: Rebecca Dimond
ISBN-13: 9783319746449
Einband: Book
Seiten: 147
Format: 218x154x17 mm
Sprache: Englisch

Legalising Mitochondrial Donation

Enacting Ethical Futures in UK Biomedical Politics
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Offers a distinctly sociological take on mitochondrial donation
1. Mitochondrial donation and UK biomedical politics.- 2. Contesting mitochondrial donation: the cluster for.- 3. Contesting mitochondrial donation: the cluster against.- 4. Policy work and legitimacy at Nuffield Council on Bioethics, the Human Fertilisation and Embryology Authority, and the Department of Health.- 5. Campaigning: contested meanings, patient-families, and last minute labours.- 6. The parliamentary debates.- 7. Enacting ethical futures.
In 2015 the UK became the first country in the world to legalise mitochondrial donation, a controversial germ line reproductive technology to prevent the transmission of mitochondrial disease. Dimond and Stephens track the intense period of scientific and ethical review, public consultation and parliamentary debates preceeding the decision. They draw on stakeholder accounts and public documents to explore how patients, professionals, institutions and publics mobilised within 'for' and 'against' clusters, engaging in extensive promissory, emotional, bureaucratic, ethical, embodied and clinical labour to justify competing visions of an ethical future. They describe how this decision is the latest iteration of a UK sociotechnical imaginary in which the further liberalization of human embryo research and use is rendered legitimate and ethical through modes of consultation and permissive but strictly regulated licensing. Overall, this book presents a timely, multi-dimensional, and sociological account of a globally significant landmark in the history of human genetics, and will be relevant to those with an interest in genetics, Science, Technology and Society, the sociology of medicine, reproductive technology, and public policy debate.
Autor: Rebecca Dimond, Neil Stephens
Rebecca Dimond is a medical sociologist at Cardiff University, UK. Her research interests include patient and family narratives, the classification of genetic syndromes, new medical technologies, and the sociology of donation.

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Autor: Rebecca Dimond
ISBN-13:: 9783319746449
ISBN: 3319746448
Erscheinungsjahr: 04.04.2018
Verlag: Springer-Verlag GmbH
Gewicht: 341g
Seiten: 147
Sprache: Englisch
Auflage 2018
Sonstiges: Buch, 218x154x17 mm, Bibliographie